Back in Montgomery during my growing up there, it was completely legally enforced racial segregation, and of course, I struggled against it for a long time. I felt that it was not right to be deprived of freedom when we were living in the Home of the Brave and Land of the Free. Of course, when I refused to stand up, on the orders of the bus driver, for a white passenger to take the seat, and I was not sitting in the front of the bus, as so many people have said, and neither was my feet hurting, as many people have said. But I made up my mind that I would not give in any longer to legally-imposed racial segregation and of course my arrest brought about the protests for more than a year.

I had two options. One was to remain silent and wait to be killed. And the second was to speak up and then be killed. I chose the second one. I decided to speak up.

For me, school was probably the most traumatising and most difficult part of my life. I already was being bullied at the age of six. I think at the time, (at) that particular school, I was probably one of three kids of colour and just bigger, stronger, bullying kids were throwing me around a lot of the time.

We received death threats, yes, but you see when you are in a struggle, there are going to have to be casualties, and why should you be exempt? But I often said, “Look, here, God, if I’m doing your work, then you jolly well are going to have to look after me!” And God did God’s stuff.

Did the Victorians fear death? As Death says in one of my own books, most men don't fear death, they fear those things – the knife, the shipwreck, the illness, the bomb – that proceed, by micro seconds if you're lucky and many years if you're not, the moment of death.

Let us consider me as a test case. As I have said, I would like to die peacefully with Thomas Tallis on my iPod before the disease takes me over and I hope that will not be for quite some time to come, because if I knew that I could die at any time I wanted, then suddenly every day would be as precious as a million pounds. If I knew that I could die, I would live. My life, my death, my choice.

I remember what George said and vowed that rather than let Alzheimer's take me, I would take it. I would live my life as ever to the full and die, before the disease mounted its last attack, in my own home, in a chair on the lawn, with a brandy in my hand to wash down whatever modern version of the "Brompton cocktail" some helpful medic could supply. And with Thomas Tallis on my iPod, I would shake hands with Death.

When my father was in his terminal year, I discussed death with him. I recall very clearly his relief that the cancer that was taking him was at least allowing him "all his marbles". Dementia in its varied forms is not like cancer. Dad saw the cancer in his pancreas as an invader. But Alzheimer's is me, unwinding, losing trust in myself, a butt of my own jokes and on bad days capable of playing hunt the slipper by myself and losing. You can't battle it, you can't be a plucky "survivor". It steals you from yourself. And I'm 60; that's supposed to be the new 40.

It occurred to me that at one point it was like I had two diseases – one was Alzheimer's and the other was knowing I had Alzheimer's. There were times when I thought I'd have been much happier not knowing, just accepting that I'd lost brain cells and one day they'd probably grow back or whatever. It is better to know, though, and better for it to be known, because it has got people talking, which I rather think was what I had in mind.