It went past being hungry; it was actually painful in your stomach. I could feel my intestines twisting in the middle of the night. I would scream to my grandmother and she would get me sugar water and it would settle it down. A lot of my values come from being resilient. The people from my community might be poor financially but they are happy, proud and resilient people.

When Milton's Satan stood in the pit of hell and raged at heaven, he was merely a trifle miffed compared to how I felt on that day. I felt totally alone, with the world receding away from me in every direction, and you could have used my anger to weld steel. Only my family and the fact I had fans in the medical profession, who were able to give me useful advice, got me through that moment.

Deprivation of the ability to speak is more like an attack of impotence, or the amputation of part of the personality. To a great degree, in public and private, I “was” my voice. All the rituals and etiquette of conversation, from clearing the throat in preparation for the telling of an extremely long and taxing joke to (in younger days) trying to make my proposals more persuasive as I sank the tone by a strategic octave of shame, were innate and essential to me. I have never been able to sing, but I could once recite poetry and quote prose and was sometimes even asked to do so.

I moved to Argentina, then back to Tokyo and then to Anchorage, in Alaska, where I ran a restaurant. After 50 days the restaurant burnt down – an electrical fire. I lost my dream. I lost my money. I lost my passion. I thought about suicide, but thinking of my family and my kids made me realise I had to wake up.

None of this was supposed to happen. At 38, I wasn’t supposed to lie on my back in the E.R. on a late December morning and be told by a teary radiation oncology resident that the pain I’d been having for two months — that I’d been assured was from having a weak core after months of chemo — was actually from a tumor that had devoured my L2 vertebra. John wasn’t supposed to have to hold me up on the toilet. Put my pants on for me. Do Christmas Eve for the children without me. I’m not supposed to be thinking about where he will sit and hold my hand as I take my last breath.

So maybe I don’t try to figure it out. Maybe I just aim to get the couch right: strong bones, high-quality leather, something earthy and animal and real. A surface that knows something of what it was to be alive, that warms to our touch and cools in our absence. Also: an expansive bench that fits all of us. Something that will hold us through everything that lies ahead — the loving, collapsing and nuzzling. The dying, the grieving.

But in the weeks after I learned that the breast cancer I have been in treatment for over the past year had spread to my bones — breaking my spine and becoming incurable and most likely fatal — finding the perfect living-room couch has begun to feel like the most important thing I’ve ever done.